Desmoid Tumors: The Basics
Desmoid tumors are rare and locally-aggressive growths. They are not commonly known or understood, and being diagnosed with one can leave you with more questions than answers.1-3 Doctors have described desmoid tumors as having “tendril-like” growths because of how they look and how they can invade surrounding parts of your body. These “tendrils” can grow unpredictably.2
You don’t have to feel like your desmoid tumor is taking over your life. Understanding this condition is the best way to have a voice in your care. It’s also important to know what to ask your doctors and care team—so you can have a better understanding of the condition and its impact on your life. Learn more about desmoid tumors>
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- Cancer.Net. Desmoid tumor: statistics. Accessed May 29, 2024. https://www.cancer.net/cancer-types/desmoid-tumor.
- Kasper B, Baumgarten C, Garcia J, et al. Desmoid Working Group. An update on the management of sporadic desmoid-type fibromatosis: a European Consensus Initiative between Sarcoma Patients EuroNet (SPAEN) and European Organization for Research and Treatment of Cancer (EORTC)/Soft Tissue and Bone Sarcoma Group (STBSG). Ann Oncol. 2017;28(10):2399-2408.
- Penel N, Chibon F, Salas S. Adult desmoid tumors: biology, management and ongoing trials. Curr Opin Oncol. 2017;29(4):268-274.
- Referenced with permission from the NCCN Guidelines for Patients® for Soft Tissue Sarcoma 2024. © National Comprehensive Cancer Network, Inc. 2024. All rights reserved. Accessed June 24, 2024. To view the most recent and complete version of the guideline, go online to NCCN.org. NCCN makes no warranties of any kind whatsoever regarding their content, use, or application, and disclaims any responsibility for their application or use in any way.
- Kasper B, Baldini EH, Bonvalot S, et al; Desmoid Tumor Working Group. Current management of desmoid tumors: a review. JAMA Oncol. Accessed June 24, 2024. https://jamanetwork.com/journals/jamaoncology/article-abstract/2820212